About Cataract Kids Australia
Cataract Kids Australia is an Australian charity aimed at improving the support for children with cataracts and their families, to enhance clinical care and to build connections with research across Australia. Director of Cataract Kids Australia, Megan Prictor, founded the charity organisation after her own child was born with cataracts in both eyes.
“We went through a very difficult time when our son was about 18 months old”, Megan says. “He has to wear contact lenses to correct his vision, but he refused to have anything to do with them. It became a daily struggle and huge anxiety about whether we could get the lenses out each evening. Once or twice we ended up back at the clinic with four people pinning him down on the floor to get them out. It was terribly distressing and isolating.”
“Around that time we started to hear about other families who were going through challenges like late diagnosis because the issue was missed early on, or dealing with contact lenses that didn’t fit and constantly fell out. There was a lack of reliable information tailored to Australian families, and because the condition is quite rare, the advice given by clinicians can vary widely. It was also hard to find out about the latest research both in Australia and internationally. We decided to start Cataract Kids to try to address some of these issues.”